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Yeah, us too.
Benjamin Cothren / EyeEm
If you haven’t heard of it before, that’s no major surprise.
While cases of uncombable hair syndromedoexist in the states, it’s still considered a rare disorder.
But that’s not to say you shouldn’t know about it.
@shilahmadison
In fact, two young children with the condition have become active advocates of the disease on social media.
More on their stories in a bit.
In this story:
What Is Uncombable Hair Syndrome?
@shilahmadison
How Common Is Uncombable Hair Syndrome?
Uncombable hair syndrome is so rare that only around 100 cases have been reported in the scientific literature.
She spreads awareness for the rare condition on Instagram, where she’s garnered over 20,000 followers.
@shilahmadison
I think my friends wish they had hair like mine."
Their philosophy is similar to that of Shilah’s.
And the mom has his hair-care regimen down to a science.
@uncombable_locks
“Lock’s hair is extremely soft it feels like a baby chick,” she says.
“We wash his hair about twice a month and use a leave-in conditioner It’s a 10!
Miracle Leave-inspecifically to help brush through it.”
@uncombable_locks
“These three genes code for proteins that are involved in the formation of the hair shaft.”
What they’re looking for?
Can Uncombable Hair Syndrome Be Cured?
Uncombable hair syndrome cannot be cured.
That said, it has been shown to improve with age, typically starting in puberty.
Nonetheless, there is a lack of evidence to support it as a viable treatment option.
(That’s why secondary hair like beards in men develop, he says).
They most frequently wear it au naturel and their confidence is palpable.
“Smooth-tipped, wide-spaced combs or brushes should be used to minimize tangling,” advises Dr. Cheng.
It’s also safe to style it in braids or a ponytail, says Dr. Cheng.
But keep in mind that there’s no harm in wearing it naturally, either.
Just look at Yin she’s rocking her texture and looking fabulous all the while.
For more hair taming tips:
2 Pantry Items That Will Solve Your Summer Beauty Woes:
